So over a month ago (I know, I am SO far behind with things) we went on a mini-family vacation to Philly. Morgan was due for another check-up and it is getting harder and harder each trip to travel solo. Along with Morgan getting bigger all her stuff is getting bigger too. It worked out perfectly though because Morgan and David had both earned free flights and I found a great deal on my tickets. So, during the first week of our fall break from school we took off as a family to spend a few days in Philly.
Morgan was a champ on the airplane and didn't have a single accident all day while we were traveling. As her reward she wanted to go to Target and pick out a new baby. So after landing late Tuesday night, having a late dinner, we headed to bed. In the morning we woke up late Philly time, found a place for breakfast, and then headed to Target to pick out her new baby. After that we decided to spend the day across the river in New Jersey at the Adventure Aquarium. It was really nice because by the time we arrived it was about 2:30 on a Wednesday. There was no one there so we had practically the whole place to ourselves. We could take it at our own pace and for once Morgan didn't have to fight to try to find a spot to see.



The aquarium was very nice with lots of fun things to see, including hippos. It was amazing how up close you were with them. David has some great shots on his phone as my camera died after just a few minutes of being there, but I haven't been able to get the pictures off the phone yet.
After the aquarium we decided we were all hungry for some dinner so we headed to David's all time favorite sandwich place Dinic's at the Reading Terminal Market. It truly is one of the best sandwiches I have ever had. Unfortunately that evening they were out of the "greens" that you add to the top of the sandwich and though it was still good, it just wasn't quite the same without the "greens." After eating we wandered the market for a bit, picked up some yummy chocolates for dessert, and then headed back to our hotel for an early bedtime. We were all exhausted still with making the time switch and Morgan had an 8:00am appointment scheduled the next morning at the hospital.
Thursday morning we were up bright and early and headed to the hospital. That morning Morgan had an appointment scheduled with their neurological surgeon. We scheduled the appointment after both the urologist here in Tucson and the scoliosis specialists we saw recommended that we see a neuro-surgeon to rule out tethered cord. This is something that we have been looking at/watching since very early on, but had never had her MRI reviewed by a surgeon only by a neurologist. Anyway, we met with him and he was very nice. He said what everyone else has said, that her spine does not appear tethered, but that it does end low and she has a narrow canal. He watched Morgan try to kick her legs while lying down and saw what little active movement she has. He also watched her walk in her walker. Then he recommended that we try to see a doctor at Barrow's in Phoenix for another opinion. He said that if Morgan was his daughter we would definitely keep looking at it and would consider doing "exploratory" surgery to see if it is tethered and just not showing up. The idea of doing "exploratory" surgery on the spine made us very nervous, however, he claims that there is very little risk. We are still working on trying to get scheduled with the dr. in Phoenix.
After leaving the hospital that morning we were all starving. We had not had breakfast and it was already almost 11. We decided to head back to the Reading Terminal Market so that we could get Dinics again, hopefully this time with the "greens." Thankfully they had the "greens" and we enjoyed a yummy lunch. We then headed to a park in downtown Philly that had a fully accessible playground. It was AMAZING!!!! I wish I had the pictures from David's phone to show you. It was huge, shaded, and had so much to do. Morgan loved the Tots Lot that had lots of those springy ride on toys. She also loved the swings and the giant wooden slide. It was one of those slides that you go down on a burlap sack. We hung out at the park for a good 2 hours and then headed back to the hotel to rest and clean-up for dinner.
Friday morning we were up early again. This time we planned ahead. David called the Denny's next door to our hotel and ordered breakfast take-out so we could eat breakfast while we got ready. It was a good thing he did because yet again we were at the hospital all morning with little break. When we first arrived we went for x-rays of Morgan's back in her brace. We then saw Dr. VB (the orthopedic surgeon) who checked Morgan out. He was excited to finally be able to see her walk in person (since we both went we were able to bring her walker), before he had only seen videos that we made. Anyway, as he watched Morgan walk he noticed what we have noticed, that she swings her left foot through and doesn't really seem to straighten the right all the way. I mentioned my concern that part of the problem with getting the left leg through was that I thought the right leg may be a bit shorter. He agreed and wanted to try a lift in her right shoe. With just that added bit we were able to see her take better steps with her left leg. We then discussed bracing. He said that her back is doing well....maintaining. The curve of her kyphosis has not gotten any worse, however, it hasn't really improved much. He did like how her spine looked in the brace and stated that it had definitely improved since the last x-ray. Overall I think her back is improving and I think she is getting a lot stronger. He still would like Morgan wearing the back brace 18 hours a day. He said that in regards to the KAFOs we can wear them at night still and if she wakes after 4-5hours (like to go potty) we can take them off and give her the rest of the night brace free on the legs. After meeting with Dr. VB we then headed over to orthotics to get her braces adjusted. Around 11:30 we were finally on our way out to enjoy the rest of our day in Philly.
Leaving the hospital we weren't sure what we were going to do with the rest of the day. We knew we needed some lunch, but then we didn't know what to do. We began tossing around ideas and Morgan instantly began shouting that she wanted to go back to the park from yesterday. We decided that that was a great plan. We spent another great afternoon enjoying the park and the beautiful fall weather. Then we headed back to the hotel for an early dinner and bedtime.
Saturday morning we were up at 3 am Philly time, that was midnight our time to get ready to leave for the airport. We had another great flight home with Morgan making it almost all the way. On the approach into Tucson when we were less than 10,000ft off the ground she needed to go potty. I asked her to try to hold it as there was no way we could get up. She tried so hard, but just couldn't make it. All-in-all though she did amazing on the trip and we were just so proud of her. We made it home to our house by 11 and I was ready for bed. We took a nice family nap that afternoon and just enjoyed being home again.
The best news of all during our trip was that we don't need to go back to Philly for at least 6 months. In fact, Dr. VB even said if we want to do x-rays here and mail them we could probably wait 1 year before going back! 1 year!!!!! That is amazing news.